Help for Hirschsprung Disease
Help for Hirschsprung Disease is a non-profit organisation that helps families whose children suffer from HSCR.
The Hirschsprung Disease non-profit organisation not only raises awareness for HD but they also make Buddee Bags (toiletry bags with wipes, nappy bags, 2 pair of pants) for children to carry with them and also these incredible Buddee Bears as shown above and in the below gallery that you can purchase via their website.
We had never heard of Hirschsprung Disease until we recently came across their Instagram page. We were moved immediately and wanted to help in some way.
We donated baby paed ostomy bag covers, bibs and teddy bears as shown in the below photo gallery. The Hirschsprung Disease organisation ran a competition and used our donations as prizes. Jess Ann won the Ostomate Active giveaways. This is her heartbreaking story.
Her son Digby was born in Tamworth. After 2 days of no bowel movement a distended belly and vomiting green stuff he was airlifted to Randwick Childrens Hospital. He was diagnosed at 8 days old with HD. Digby was scheduled for surgery on day 15 but started to have breathing issues. On day 20 Digby had surgery and now has an ileostomy.
After spending 4 weeks in hospital trying to get his feeds right, he was transferred back to Tamworth. After along 3 three weeks and struggling to breath Digby was flown back to Sydney. After doing a sleep study and a LOB Digby was diagnosed with having an obstruction- Digby has a small bottom jaw and a big tongue. Currently Digby is on BIPAP for sleep which Dr's are hoping he will mature out of in the future. It is not safe at all for Digby to have anything oral so he must use a tube.
You too can help! You can donate nappy bags, pants, wipes, toiletry bags and or money. Please go to their website for more information, Don't forget you can also purchase Buddee Bags and or Buddee Bears as well. Click here to find out more www.help4hd.org.au
You can also follow their instagram page help_for_hirschsprung_disease